Yet Another day spent dazed and confused

Let's play catch-up:
Both my kids have several new doctors and new doctor appointments- with specialist that specifically only deal with kids with special needs.
We went for our first visit Thursday- and it was the very best doctors visit we've ever had!!! They were so kind and understanding- they didn't rush us along, for the next patient. We spent THREE HOURS there! Plus they got us transportation to and fro.
AWESOME!
The doctor said that Violet's cyst on her neck might be from her thyroid and it will probably need to be biopsied. But first they will need a sonogram done.
I am not looking forward to this. I'm trying not to think about all the possible outcomes. I don't want to worry myself sick. I'm sick enough already.
My son did get his very first vaccination shot ever that day.
Not several at once, like all the doctors previously had wanted.
One shot- single dose. After that we will be coming back every week, or every other week for the next shot until we are caught up.
Levi did have a bad reaction, I knew it would happen, sadly. He had fever until Monday and has been even crankier than ever before!
I didn't even think it was possible!!!
He's grabbed so many chunks of my hair, I lost count.
And no, wearing a hat or scarf, doesn't make a difference.
My scalp is so sore from all the pulling!
Plus he's been banging his head like there's no tomorrow!
I worry for my son and his precious big ol' head.
I'm FRIED!

My thyroid is really fucking low! My bones hurt so badly. I feel like my body is falling apart.
I spoke to my doctor and he said if I still feel this way by Tuesday, he'll up my thyroid medication, eventhough it's ridiculously high as it is.
I swear I'm some kind of mutant! But without all the cool superhero powers!

Saturday- during the the day, in front of my apartment- a group of stupid teenage boys stopped to purposely point and laugh at me. Because I looked different (faux 80s pink mohawk).
I was shocked!!

Seriously! How ignorant are the people in my neighborhood? They are racist and homophobic! It's a nightmare! I can't stand them! We have nothing in common. I'm basically in hicksville.
In manhattan, no one gives a shit about anyone but themselves. I never thought I'd think of that as a plus!
But now I miss the city- MY CITY- more than ever before!
I fear for my kids growing up in this stuck up, stupid, ignorant neighborhood.
I was really caught off guard by those idiot boys. I used to get bullied all the time in school, but I was a kid- I mean, young kids are dumb, that's a given. But in adulthood?
It's digusting.
And I know, these dumbass boys will never leave Brooklyn, or even their neighborhood, when they get older. Because I know they'll never really "grow up".
It's pathetic, and strangely satisifying, to know this fact.

Saturday night I went out to dinner with some friends, and had a good time.
I couldn't eat and drink- as much as I would've liked to.
I didn't want to change the good mojo of the dinner, by telling them how physically ill I felt from my thyroid. And that my entire body was throbbing in pain, including my stomach.
I didn't care that I felt so horrible, because the time I got to spend with my friends, was priceless.

Sunday- I took my kids to Toy R' Us.
I took my mom and sister with me too.
It's nice to get my mom out of the house, and get some fresh air.
She has always loved toy shopping since I was a wee little one.
Violet wanted to take the entire store home, and Levi couldn't care less.
In fact he screamed most of the time- wanting to leave the toy store and go home.
Levi was still cranky from the shot he got on Thursday.
Later that night- he ripped out my hair, tore off my glasses which got caught on my nose piercing and almost ripped it out of my nose.
My nose was bleeding, my scalp hurt and I was a MESS! A hot mess!

Monday I went to the city for the ultrasound of my thyroid.
It was done three times! Because all the doctors couldn't believe what they saw.
I was freaked.
Apparently my thyroid is RIDICULOUSLY small. Abnormally small.
Which explains why I feel so sick and tired all the time.
The can't figure out WHY it's so small though.
I might have an auto immune disease that makes my immune system attack my thyroid for years until it becomes too small and very underactive.
Oh fucking joy!
But that's only one possibility.
I haven't heard from my doctor yet, as to what the other possibilities are and what are my options to treat it.
On another note-
My mom was told yesterday that April 29th, at the end of THIS MONTH, will be her very last day of work with the company.
So much is going on right now with my family. I can't wait for things to look up!

On yet another note-
I will be talking about in my upcoming blogs- how ridiculous the things we find appealing in our society actually are.
I'm bringing back an old movement of mine- that I believe deserves a come back- and another look at.
My Anti-Cool Revolution.
Totally worth it. And very ridiculously uncool of me :)

Kisses Bitches,
That's all for now!
Can't wait to see what tomorrow brings!

P.S. Today Violet has her first ever dentist appointment, I hope I don't lose any fingers!!!

FUCK the weekend!!

As I said earlier- in a previous blog post-
My new doc let me know- that my thyroid is fucked up.
This isn't anything new obviously!
She told me to cut OUT one thyroid pill and UP the other.
I knew this was a very very bad idea.
So instead of cutting the first one out- I cut it in half, and upped the other like she said.
I spent most of the day in some of the worst pain in my entire fucking life!
EVERYTHING HURT!
My bones, muscles, my body was swelling really badly.
I was gonna call 911 at this point!
I felt like I was in a K-Hole!!!
Hey if you're old enough, and did drugs like I used to- remember K-HOLE????
It sucked- but that's besides the point.
It was a fucking nightmare.
I have been so fucking bitchy and angry for weeks now.
DAve and I both realize- we are WAY nicer to strangers than we are to each other.
But I was gonna explode!!!
Yesterday morning I had a fight with Dave at 4 A.M!
When we went back to bed- I told him, "I just might end up choking you in your sleep."
He responded half joking, "Well that's why I don't stay in bed all night long. Because I'm afraid I'll never wake up!!!"
I started hysterically laughing- but I knew he was kinda right. I was about to fucking SNAP!!!
During yesterday a lightbulb went off- I called my doc asking to go back on my anti-psychotic (Geodon),
I had been off it for about two months- because we were worried that it was affecting my heart.
At this point- I didn't care.
The night before - all I dreamt about was slapping people!!!
I was INSANE!
But I've also mentioned in my blogs that anger is my first clue- irriational anger is my first clue- something is going to happen- to my heart and my body.
The end of yesterday I spent wanting to die, the pain was so bad.
I couldn't move!
I gladly took my geodon last night- hoping to pass out!
Praying for a near black out- to go to sleep and not wake up till morning.
And I DID!!
I do, I really do love love love my drugs.

I woke up way less swollen- at least five pounds less!!! And decided obviously this doctor has no clue what's wrong with my thyroid, so I'm not gonna cut down, or cut out my thyroid pill- till I see an endocrinologist.
I KNOW for a fact something is REALLY REALLY WRONG with my thyroid- and I'm not gonna mess with it till I see someone with some knowledge of such things.
Like I said previously- my doctor had said she's never in her entire life seen blood results like mine.
Meaning- one- I'm TRULY UNIQUE!!! hahaha!
and two- She's never treated someone with my problem!

Today I went back to my normal first pill, and still upped the second.
It was like a brand new fucking day!!!
The birds were singing and I was happy.
I was still uncomfortable- remnants from yesterday.
Plus I have bone pain all the time now.
Did I mention I've had the sniffles all day long too?
I was nice to everyone, not angry.
I felt somewhat at peace.
I cleaned the house, cooked brisket, stewed vegetables and risotto.
YEAH baby!!! I'm back!
In an 84 year old body- but still I'm kinda happy today- and that's way better than before.
I took a quick walk with Dave to the bakery- a block in, stabbing pain starts in my ankle and then my leg. I ended up limping the rest of the way there and back like the fucking humpback of notre dame (Dave: it's really HUNCHback, but,... uh..., yeah)!
But I was determined to not let the pain get in my way.
DAMNIT I wanted cookies! And I wanted them NOW DAMNIT!

And I got my damn cookies! Na na na boo boo!

I'm typing this blog with my foot up on my couch because it feels broken even though I KNOW it's not.

I love GEODON. It makes me- NOT a serial killer.
A little angel- with a raging angry little devil inside just waiting for the fucking moment to get out and motherfucking party, bitches!!!

On that note I leave you.
KISSES BITCHES
Rock out with your cock out!!! Woooooohooooooo

*P.S. I'm gonna be going blonde- SO blonde, people will have to wear sunglasses to look at me directly.
And maybe then...dreadlocks??? My options are open.

*P.P.S.- I came into the livingroom yesterday- after just waking up, and Lee's therapist was there working with them. She saw my hair (and how big an afro it was).
She looked SHOCKED! And said "I've never seen it that big!"
At first I really wanted to say all these dirty jokes that jammed into my head, like a bunch of fat people stuck in the doorway of a cake shop (I LOVE fatties!! Don't HATE!).
Such as-" You mean my dick?!" (you get the idea)

But my real anser "Yeah actually this is it small, it can get three times bigger.
I TOLD YOU MY AFRO WAS BIG!!! COME ON, MOM!! Tell me who my REAL father IS!!

oh boy

This morning I went to my cardiologist for an emergency EKG.
Of course, it showed nothing, because my heart was fine this morning.
But I could barely walk because of the pain in my legs. I had to hire a car service to get me to the doctor.
Dave ended up sleeping in the waiting room.
While the nurse did the EKG, I told her about my leg pain and the swelling.
I then went across the hall to get an ultrasound of my arteries.
while walking there- I whispered to the nurse, "Wait one second please. I'm just gonna go shake my husband awake very quickly."
She giggled while I walked over to Dave and shook him awake while yelling "WAKE UP already!!!"
All the old people in the waiting room laughed quietly, as to not anger the giant (that being Dave).
He woke up, only a tiny bit startled- meaning apparently I wasn't loud enough ;)
We walked into the sonogram room, the technician was a man.
I strangely felt comfortable with him, but when he offered to have a female technician do the sonogram, I grabbed the chance.
The LAZY as FUCK woman (older- very obvious wig, and a bitch!) looked at me, and went- "Nah. He's good at this. He'll do it."
She was eating, and didn't want to be disturbed. What a fucking CUNT!
So he came back in, told me to take off my pants and use the gown to cover my underwear.
Truthfully, I was nervous. Especially since I was in the same position a month ago- in a very bad office, with a very bad man.
Though this time Dave was right there next to me, watching him like a hawk.
I got to see what the previous exam- was supposed to be like.
The other technician (from hell) did everything wrong and now I'm FUCKING positive he didn't do any of the sonograms correctly that day and purposely molested me.
Oh joy. I'm this close to storming in that office and ripping his fucking balls off with my bare hands- that fucking cock juggling thundercunt!
Meanwhile everyone at that office told me, that what happened that day, was professional and that's the way the sonogram was supposed to be done.
REALLY?!!! REALLY??!!!
What fuck heads!
Anyways back to the story.
This guy was awesome- he was professional and funny and made me feel at ease the whole time. We talked about his family. I ended up finding out he had thyroid disease also! And had radiation to treat it a few years ago.
Dave, the technician and I were all laughing and chatting- making the painful sonogram (yes painful - they have to press down really hard on my legs- which were already hurting so fucking badly), way more comfortable.
But during the sonogram, while laying on the table- I started getting really dizzy and hot.
I told him, and Dave rushed to get me water. We didn't know why this was happening. I wasn't doing anything physical!
After the sonogram was done, I shook his hand and thanked him for making me feel comfortable and not scared. I told him, I had a sonogram for the same reason, done about a month ago, and the guy was completely unprofessional and totally inappropriate ( putting it lightly!) and a fucking idiot.
He apologized that it happened to me and wanted to know what office that happened in. I told him the doctors name and everything.
He was very sweet and kind.
After that I was told to go back to my doctor and have her take my blood pressure again. I ended up in the waiting room for almost an hour, because the doctor was mobbed with patients. By the time she got to me- apologizing and apologizing for taking too LONG, my blood pressure was back to normal (well normal for me that is- 95/65).
The plan- This week people will be coming to my house to hook me up to an event recorder.
YUP! I FUCKED UP! The holter monitor was NOT an event recorder. I was told that they were the same thing- apparently by an idiot doctor in the past before.
Holter monitor- is only for 24 hours.
An Event recorder- is for three weeks.
Yes- THREE WEEKS!
Because the 24 hours I was hooked up before- nothing happened. My heart felt fine that day. So of course nothing major showed up as wrong on the monitor, although my doc looked at the readings and said I had some kind of tachycardia normally brought on by stress- but I hadn't been stressed. She mentioned I may have some form of arrhythmia.
I will also be seen by an endocrinologist and maybe a rheumatoid arthritis doctor. The word fibromyalgia was also tossed around.
Fun times. Fun times.
MORE and more doctors.
Hopefully one of them will be "The One". Nooo, I don't mean Neo (from "the Matrix") because there is ONLY ONE, Keanu Reeves- of course (who I am allowed to marry upon my husband's death-btw!).
Sorry, totally off topic- I am a nerd- and sometimes go to my happy place.
Anywho-
I'm hoping one of these doctors'll find the problem and fixes it! Please!!! And soon!!!

Okay dokey- BTW Despite all this going on and Levi having a cold on top of this-
I'm still planning to celebrate my upcoming 30th birthday.
Even while attached to my event recorder!!!
That'll make it even MORE entertaining!!! (but please, no cellphones, or my chest might accidentally set on fire- just kidding!...no I'm not...)

I was told tonight that, maybe people aren't responding to my invite (to my little get together at my house- with lots of kids, friends and family) because they think I'm gonna cancel it- "Like Always".

This statement hurt me a lot.
I am a person of my word- this means a lot to me.
The only reason I've had to cancel parties in the past, was either -one- due to my health- or my family's health, or, number two- being completely broke and having to go to a soup kitchen to get food.
Both - I think- being very good reasons to postpone or cancel a party, don't you??

When I was younger- I'd cancel for any reason. I AM bipolar and DO have problems following through. I'm a self-sabotager, for sure.

But nowadays, especially after having kids, my word means EVERYTHING to me.
Plus- I am looking forward to seeing everyone. That's all that matters- just being surrounded by kids, family and friends- right?!

So if you are one of "those people" that are afraid I'll end up cancelling and don't trust me to "follow through with my plans". Maybe you shouldn't come anyways.
I don't need negativity in my life- or my house.
And maybe you just plain suck.

But I doubt ANY of you feel that way, riiiiiight???

Kisses Bitches!!!
Grow some balls would you! Or a HEART!!!

*photo of the bionic woman- found on google.

Mad as a hatter

Yesterday, I went to two doctor appointments. One- I got blood taken yet again. This time- it didn't go so well. The nurse did it wrong- surprise surprise- and my vein started swelling up and turning black and blue- fun right? Yeah, not so much- it was really painful- plus it was my right arm- the one that was in the most pain to begin with. The doctor thinks I have Rheumatoid arthritis. Oh joy. Sounds about right though. So that arm is shot to hell. Then after I suggest to her- to start taking blood from the other arm- since it had been over ten minutes of me swelling up and had only filled three vials of blood with still six more to go. I finally told her- it was painful- and only then did she give up on that vein and take from the other arm. The other arm, the blood came easily- much to my relief.
So I walked out of the doctor's office with both arms in band aids. Everyone I passed on the walk home looked at me with pity- like, you poor sick sick girl.
My right arm is in a lot of pain, the swelling of the vein went down- but it still hurts like a bitch.
Then later I had a dermatologist appointment. The whole day I felt like I should cancel- but I told myself- to go through with it already and get it over with already.
I should have listened to my instincts. When I arrived, there must have been over twenty people in the waiting office! I filled out papers with my messed up right arm.
Then I overheard the receptionist tell a patient it'd be over two hours waiting time. That's when I decided to reschedule for another date.
My bones are killing me- but I figure if this is something I'm going to have to deal with for the rest of my life- I might as well get used to it, right?
Did I mention I'm on a new medication?
When I went to the doctor on Thursday- he told me my thyroid was really low. So besides my other thyroid medication, he added another one to my daily intake.
Now I have to take the first thyroid med when I wake up, wait a half hour, then take the next one, then wait a half hour, then eventually eat.
It's a pain in the freaking ass!
I had a routine before- every morning wake up, make coffee, eat breakfast- then deal with the day's disasters.
Now It's all screwy. And without me going directly to coffee I might smash and break things in the house. I'm mad, I'm sad, I'm apparently Dr. Seuss!
But you get what I'm saying. I'm not used to this medication yet. And I have no idea what to do with myself in the morning if I can't eat right away. So I've been tired, and cranky- and taking a shower freaking early in the morning, instead of later on in the day.
Levi can sense when I'm down or upset, he'll snuggle with me and it does make me feel better, but then somebody will do something stupid and I'll forget any happiness I had just experienced.
I'm BORED! Not in the sense that my LIFE is boring- because it's really nothing of the sort.
I want to go places. The beach, a pool, even a freaking museum, something for goodness sakes.
It's usually just Kayla and me and the kids during the day. And with this pain, it makes pushing the big rocket sized stroller a bit difficult, to say the least.
I'm very thankful for Vi and Lee's therapists-it gives the kids things to do, and they learn a lot. But when the weekend comes- it's kind of lonely.
Yeah sure I take them to the playground- but Violet needs WAY more than only one person running after her- she needs a team of people! She's quick and she uncoordinated- and falls ALL the time. Her physical therapist is working on this with her- but she has a long way to go before I let her just run around without me being scared shitless.
Dave sleeps most of the day, to my despair. Then at night, I get tired early because it very difficult to sleep through the night in pain. I'm reminded of my pain frequently during the night, so I'm tossing and turning, and in lots of pain.
I don't even bother with Advil or Tylenol- because it doesn't make a dent in the pain whatsoever.
I'm frustrated, sad and angry. All I want to do is cry- but of course I won't- because as you all know- I don't LIKE to cry- ever.
I guess I'd say I'm depressed- and that would be putting it lightly.
Hopefully I'll figure out something we can do today. And not just walk around while I push an enormous stroller around in pain.
There's so many different things going on at once in my life right now- that are out of my control. I have to realize I can't "fix" people- in my life right now- or maybe ever.
Have you ever been so upset- but had nothing to get out your frustration on. I can't scream or break anything. It's just all bottled up inside me about to burst!
I guess I'll just push that anger further down- way down, right? What other options do I have?
Man, I wish I had a screaming tree ( a tree that takes all your anger and abuse out on) but then I'd feel bad for the tree...so what THEN?!
Sorry for the long angry rant.

Kisses Bitches! Hope your weekend is TONS better than mine!

GRRRR! SO Angry!!!

Have you ever had one of those mornings where you wake up in a horribly bad fucking mood.

And no, it's not PMS.

I haven't been sleeping well for the past few days. Since I'm not taking Geodon anymore- I take benadryl every night- so I can get at least a little sleep AND I have bad allergies- so taking this at least once a day helps me feel better.

I've been out of benadryl for a few days now- so every little movement or sound wakes me up.

I'm tossing and turning all night long. I woke up this morning to a big "BAM" sound- it was Levi in his crib- never a good way to wake up by the way- to a really loud noise!- also my whole body was really itchy. It's totally an allergic reaction to the foods I've been eating. Usually if I take benadryl then I don't get such a reaction. And yes I could make it easier on myself and not eat any milk products- But then I'd eat nothing in the house. We're running a little low on food, and I'm waiting ever so patiently for food stamps to finally kick in.

Food stamps were given 10 days to comply with the court order from Albany. We call them today and they say they have 30 DAYS to comply-which is total and complete bullshit!

So we're going to call Albany today- and try to fix this horrible situation.

I really don't want to have to use all of August's SSI money towards food again, I want it to go towards bills and things the kids need, like diapers and such.

This is so very frustrating.

Yeah so this morning- I was not happy. Plus Dave was up all night, trying to fix the computer.

His email was hacked the other day and we got two viruses on the computer. Whenever something goes wrong with the computer- Dave fixes it- thank goodness- but not without being completely obsessed- for hours on end fixing the problem- in a BAD freakin' mood. He couldn't focus on anything else, but the computer. Plus we have the old game Tetris on our computer and he won't step away from the damn thing. I mean I love Tetris too, but I'm not going to lose sleep over it.

This food stamps thing- really has me in a knot. I can't wait for this problem to get fixed- so that I don't have to worry about my family starving.

On a good note- Levi face is getting better. I don't think I blogged about what was happening- I was very busy trying to get my baby better.

He got a bug bite over the weekend on his cheek, which very quickly got badly infected. I think he might have been rubbing it, or maybe he was severely allergic to the bite. We're not quite sure. So This whole week, we've been back and forth at the doctor's office, plus medicaid didn't want to cover one of his prescriptions for some unknown freaking reason. I also had to put hot compresses on his cheek several times a day. A couple of days ago, I spent the night crying because I was so worried about my baby- his whole cheek was so swollen- and I felt helpless.

Little did I know I actually was helping, and now his cheek is getting much much better- it's still going to take awhile for it to completely go away- but this is progress.

I've been extra emotional this week. Not in the "poor me" kind of way- but every time I was thanking someone- I'd start to get all teary eyed. It was a little on the sick side- since I HATE crying.

Plus I went into Walgreen's the other day- and maybe all of a sudden I have static electricity powers or something ( remember the t.v. show "Static Shock!") and I was shocking everything I touched!!! Including my sister several times! It was crazy- but very funny at the same time.

All I want to do is eat fried chicken, pizza and chocolate right now- but I have none and that makes me very very sad. I really do love fried chicken- is there anything that's not good deep fried??!

The answer is NO! DUH!

I can't believe you were even trying to come up with an answer! Shame on you!!!!!

Anyways- that's my rant for today.

Kisses Bitches!!!