Showing posts with label seizures. Show all posts
Showing posts with label seizures. Show all posts

Saturday, May 1, 2010

This blog is dedicated to my sister


She is in the hospital right now, and I'm lost without her.
So this blog entry is for her.
We are so close, people don't understand. We are like mother/daughter and sometimes twins. We finish each others sentences, we laugh at each other's jokes, and mistakes.
And yes we rag on each other, but really she is my heart.
I'm so panicked here, at home with the kids. Dave injured his knee, and I somehow fucked up my back. So we're here taking care of our crazy kids, and all I can think about is my sister.
She had a seizure this morning at 4 A.M in the morning, alone in the hospital,and I wasn't there to hold her and tell her everything was going to be okay.
It killed me.
She said something to me the other night, when she was home, she said "You are the first person I see when I wake up (from the seizures). You're always there for me".
I had to stop myself from crying, because I hate crying. I had to be strong for her, for everyone, like always.
My sister wasn't feeling well all Friday morning, and we were watching her like a hawk. I even walked her to the restroom. I had to make sure she didn't fall.
My parents took her to the hospital that afternoon, and she's been there since getting several tests done. The house is so quiet without her. Even with my kids both screaming, it feels quiet. If you know my sister, you know she's ALWAYS talking.
ALWAYS. So without hearing her voice, I feel empty.
When I say we're like twins, I mean because of how close we are because , I don't think, we look alike at all, but that's just me.
My mom would buy us clothes, when I was younger, and she'd buy my sister and I the SAME exact clothing! In the same color- just different sizes! It was horrifying at the time, but now I just find that hilarious!!!
We are 9 years apart in age! She's my younger sister- but we wore the same things.
Now I shop for the both of us, I pick out her clothes and buy them for her. We have similar taste, except hers is a little more conservative then mine.
We now share each other's clothing. All the time. Before she would steal my clothes, and I'd get upset, now I don't care. I just want her to look good, and if that means borrowing my stuff, I don't mind.
When I think of it, Dave didn't only marry me, he married my family.
I am the head of my household, I run things. So I could never leave them by themselves, I'm not putting my parents down, I just know my mom would be beside herself. She'd be very lonely, I'm her best friend, and she's one of mine. My dad would lose his head, if it wasn't attached to him. And my sister, well let's put it this way, when I moved out many years back, Kayla was very lonely. And when I moved back- we were both so happy and a bit relieved.
My kids LOVE Kayla, she's their buddy. And Dave and Kayla are super close, she calls him her brother. Probably because he picks on her, just like a brother.
So yeah, Dave kind of married both of us, and totally not in a sick way but because just like a brother, he also can't stand her at times, and vice verse.
We always go out all together, my sis, Dave, the kids and I on walks, shopping, etc.
I'm not sure what people think when they see us all together. Not that I give a crap.
Our home is really really missing a huge piece of the puzzle, my sister.
When you read this, Kayla, whenever that is- I just want you to know, I'm not the same without you around. You're not only my sister, you're my buddy.
You are loved so much and I can't wait to have you back home, safe and sound.

I love you, Boo.


That's all for now.
Wish my sister luck.


*photo of the two of us- last summer while I was pregnant with Levi, on the Q train to Coney Island. Real good times!

Thursday, April 29, 2010

An almost nervous breakdown


I went to court yesterday, without a lawyer, because I was having a hard time finding one that would take the case.
Spent half the day there...to come out with nothing.
I'm still seeking a lawyer. My sister went to the epilepsy clinic today, to find out she may be having seizures throughout the night! Which is why she wakes up in a daze. I'm terrified. All I keep picturing is when I thought she was dead and not breathing. I'm so scared. Plus now my son seems to be having seizures as well, as of two nights ago.
I hate this fucking apartment!
So yeah, now my sister will have to stay in the hospital for three days next week. Her and I are never apart, so I'm going to be totally losing it.
And Levi will have to do the same thing Violet had done in the hospital.
In the midst of all this, I'm really really ill, and have no time to get better. I didn't even have time to see the doctor today.
Dave has to go to food stamps yet again, because they closed our case AGAIN. Saying they mailed us things they never ever did. Why are poor people ALWAYS fucked with?!
Levi's also in the middle of evaluations from several different types of therapists.
Because he is experiencing many delays. Which means he'll be getting hours of therapy a week as well.
And on top of that, I'm trying to make sure everyone's eating what they are supposed to be eating, since I have three diabetics here (Dave and my dad) and another(my sister) who NEEDS sugar, constantly I have to make sure her blood sugar doesn't get low because that also leads to her having seizures.
It all came tumbling down on me today. Like it all of a sudden hit me- all the pressure, and stress.
I just laid down on the floor crying to myself. The whole time trying to pull myself together.
So it wasn't a full meltdown, because believe me I've had quite a few of those in the past.
I just feel like this is TOO much. Too much for me to possibly handle, but I have to, there's no choice.
I've got to do a million and two things in the next few weeks. and I can't even get myself better.
ARGH!!!!
I NEED a miracle RIGHT NOW!!!!
God?! Anyone???



Hopefully a miracle is on it's way!!!


More to come.